Skip to content

COVID-19 Message (TITLE DOES NOT SHOW)

Looking for mental health support to navigate COVID-19 & more? Click to go to Head to Health

Rare Voices Australia
  • Facebook
  • Twitter
  • Instagram
  • Youtube
  • LinkedIn
  • Donate
  • Become an RVA Partner
  • Search
  • About
    • Our Purpose
    • Our Team
    • RVA Ambassadors
    • Governance
  • Our Work
    • Advocacy
    • Policy
    • Education
    • Research
    • National Rare Disease Summit
    • Parliamentary Events
    • RARE Portal
    • RArEST Project
  • Rare Diseases
    • What is a Rare Disease?
    • Helpful Information
    • A-Z Support Directory
  • Partnerships
    • A-Z of RVA Partners
    • Become an RVA Partner
    • RVA and Research
    • Project Partnerships
    • Get Involved
    • Round Table of Companies
  • News & Stories
    • News
    • Personal Stories
    • Share Your Story
    • eNewsletters
    • Media & PR
  • Action Plan
  • Contact
  • About
    • Our Purpose
    • Our Team
    • RVA Ambassadors
    • Governance
  • Our Work
    • Advocacy
    • Policy
    • Education
    • Research
    • National Rare Disease Summit
    • Parliamentary Events
    • RARE Portal
    • RArEST Project
  • Rare Diseases
    • What is a Rare Disease?
    • Helpful Information
    • A-Z Support Directory
  • Partnerships
    • A-Z of Partners
    • Become an RVA Partner
    • RVA and Research
    • Project Partnerships
    • RVA Round Table of Companies
  • News & Stories
    • News
    • Personal Stories
    • Share Your Story
    • eNewsletters
    • Media & PR
  • Action Plan
  • Contact
  • Facebook
  • Twitter
  • Instagram
  • YouTube
  • LinkedIn
  • Donate
  • Search

Acrodysostosis


Rare Disease Name: Acrodysostosis

Support Organisation(s):
Acrodysostosis Support and Research

Personal Stories:
Frankie’s Story

Post navigation

Still’s Disease
KAT6A related disorders
Rare Voices Australia
Registered Charity
  • About
    • Our Purpose
    • Our Team
    • Governance
  • Our Work
    • Advocacy
    • Policy
    • Education
    • Research
    • National Rare Disease Summit
    • Parliamentary Events
    • R.A.R.E Portal
  • Rare Diseases
    • What is a Rare Disease?
    • Helpful Information
    • A-Z Support Directory
    • Orphanet Portal for Rare Diseases
  • Partnerships
    • A-Z of Partners
    • Become an RVA Partner
    • RVA and Research
    • Project Partnerships
    • Get Involved
    • RVA Round Table of Companies
  • News & Stories
    • News
    • Personal Stories
    • Share Your Story
    • eNewsletters
    • Media & PR
  • Action Plan
  • Contact
Tel +61 (0) 497 003 104
Email info@rarevoices.org.au
Post PO Box 138
Mentone VIC 3194

Donate

Become a Partner

Stay up-to-date and get involved.
Sign up now for our newsletter.


  • Facebook
  • Twitter
  • Instagram
  • Youtube
  • LinkedIn

Rare Voices Australia acknowledges Aboriginal and Torres Strait Islander people as the Traditional Owners of Country throughout Australia and as a priority population of the rare disease sector. We pay our respects to Elders–past, present and emerging.

© Copyright 2023 Rare Voices Australia Ltd.  |  Privacy Statement
Please note

You are now leaving the Rare Voices Australia website to go to the Orphanet website.

Orphanet is a globally renowned portal for rare diseases and orphan drugs. The portal aims to provide high-quality information about rare diseases, and ensure equal access to knowledge for all stakeholders.

Please click here to continue to Orphanet: www.orpha.net