Rare Voices Australia (RVA) thanks everyone who attended our Parliamentary Event in Canberra today hosted by the Chair of the Standing Committee on Health, Aged Care and Sport, Dr Mike Freelander MP. We thank Dr Freelander, Member for Macarthur and Co-Chair of the Parliamentary Friends of Australians Living with Rare Diseases, and the following Parliamentarians who spoke at the event:
- Hon Ged Kearney MP, Assistant Minister for Health and Aged Care
- Senator the Hon Anne Ruston, Shadow Minister for Health and Aged Care
- Dr Monique Ryan, Member for Kooyong and Co-Chair, Parliamentary Friends of Australians Living with Rare Diseases
RVA has been working with Dr Freelander to re-establish the Parliamentary Friends of Australians Living with Rare Diseases, which both he and Dr Ryan referred to at today’s event.
Special thanks to our RVA Ambassadors and the RVA Partner organisation leaders who also joined us. The Parliamentary Event provided an opportunity for the rare disease sector to continue fostering strong relationships with all political parties and to welcome newly elected members of the 47th Federal Parliament, while introducing them to key rare disease issues.
In addition to celebrating RVA’s 10th anniversary, the event demonstrated the need for the entire rare disease sector to collaborate to ensure the ongoing successful implementation of the National Strategic Action Plan for Rare Diseases.
