Rare Voices Australia (RVA) is the national peak body for Australians living with a rare disease. RVA provides a strong, unified voice to advocate for policy as well as health, disability, and other systems that work for people living with a rare disease. Our person-centred focus sees us working with all key stakeholders, including people living with a rare disease, governments, peak bodies, researchers, clinicians, and industry. We advocate for the best outcomes for Australians living with a rare disease.

Learn more about RVA by visiting RVA’s website.

The Australian Government’s National Strategic Action Plan for Rare Diseases

The National Strategic Action Plan for Rare Diseases (the Action Plan) is the first nationally coordinated effort to address rare diseases in Australia.

Research and Policy Publications

Education and Awareness

Resource Collections for Priority Populations