Running 100km in 200 days to raise awareness for rare diseases

My name is Tim and I was formally diagnosed with Adult-onset Still’s disease (Still’s disease) in 2016 at the age of 22. Still’s disease is a rare systemic, auto-inflammatory condition that affects between one in 100,000 to one in 1,000,000 people globally.

In August 2020, to stay on top of my mental health, combat the effects of calcium leaching from my medication and a desire to encourage people, in particular the rare disease community, I set myself the goal of running 100km in the 200 days before Rare Disease Day — a big audacious goal given my health at the time!

In 2021, I launched the Running Rare website to raise awareness and share the stories of the rare disease community. I’ve laced up the runners again this year and will be attempting to run 50km further than last year.


Target Amount: $5000

Total Amount Raised: $

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