Dialog Box


Submit your personal Story 

Submit your personal story of living with a rare disease in Australia. Sharing your personal story has benefits  not only to the person telling the story but also for  those who share a similar experience and the audience reading the story.


Please fill out the below form to share your personal story.

Thank You

Your form has been received.

By submitting your personal story, you certify that it is an original work and you give Rare Voices Australia consent to use the work and images contained in the file. This includes posting your story on the Rare Voices Australia website, our social media channels and in our monthly newsletter. RVA will contact you directly if we wish to use your story for any other purpose. Please note that all stories are proofread and may be edited in-line with RVA’s Style Guide - if any further changes are made to what was originally submitted, RVA will be in touch prior to publishing your story. You can choose to withdraw your personal story at any time. If your story has already been published online and you’d like your story and associated image to be removed, please reach out directly via email: communications@rarevoices.com.au


Please Note: In accordance with RVA's Privacy Policy and Confidentiality Policy, your published personal story will only include your first name, rare disease and the State/Territory of residence. RVA will not include your email address or personal contact details.