Dialog Box


national rare disease summit

SAVE THE DATE: The 2021 National Rare Disease Summit will be held on Friday 12 and Saturday 13 November 2021 at Novotel Sydney Brighton Beach. The event is by invite only.


Read about the last Summit held in 2018 below. 


In mid-November 2018, Rare Voices Australia held its second National Rare Disease Summit. We have put together a Summit Report that provides both delegates and those who weren't at the event, with a snapshot of the two-day Summit. The Report includes a short summary and links out to a selection of content. While it's impossible to capture the Summit in its entirety via any Report, we hope this provides people with an insight into the energy and buzz that was a core feature of the 2018 National Rare Disease Summit, which we feel is very important to acknowledge and celebrate.