Dialog Box


RVA Board of Directors & STAFF








Joanna Betteridge BA LLB LLM GAICD

CHAIR, Rare Voices (Vic)

Joanna Betteridge, Principal of Betteridge Legal Consulting, is an employment and workplace safety lawyer and consultant and an accredited mediator. Joanna is also a Senior Fellow at Monash University and lectures in its Law Faculty post graduate program including lecturing in anti-discrimination law. Joanna is the immediate past Chair of the TEAR Australia Board (a global aid and development organisation) and has held a number of Board roles in a variety of not for profit and Government boards since 2003. Joanna sat for many years on the committee of the Australian MPS Society, becoming involved soon after her two nephews, Jack and Tom, were diagnosed with MPS III, Sanfilippo Syndrome, in 1998. 


Kane Blackman

DEPUTY CHAIR, Rare Voices Australia (WA)

Kane is a senior public relations executive with the Western Australian State Government at the Insurance Commission, which delivers personal injury and liability insurance schemes, lifetime care and an investment portfolio. He has more than 14 years' experience in the mining, oil and gas, and financial service sectors, and is a Charted Secretary. Kane has previously held executive positions in communications, operations, corporate affairs and governance for a range of multinational entities. Kane is Deputy Chair of Injury Matters and sits on the Road Safety Council of WA and the WA Branch of the Governance Institute. Kane has a son with Angelman Syndrome, and is a Committee Member of the Angelman Syndrome Association of Australia.  












Raymond Saich, OAM

Director, Rare Voices Australia (NSW)

Raymond is the President of the Australian Pompe’s Association and is also a Pompe patient. Raymond was diagnosed with Pompe disease, a rare lysosomal glycogen disorder in 2002 and has been receiving treatment since 2007. Prior to retirement Raymond was a national service manager in the Medical Imaging industry.









Robert Hendriks

Director, Rare Voices Australia (NSW)

Robert Hendriks is the General Manager Asia and Chief Marketing Officer of healthcare company SFI.  Robert has over 15 years’ experience as an international senior executive in the Pharmaceutical, Biotech, Natural Medicines and Medical Devices industries.  Robert’s connection with rare diseases began in 2010 in his role as MD of a pharmaceutical company that pioneered the development and delivery of therapies for patients affected by rare diseases.  Robert has worked with the Department of Health and Ageing and the Life Saving Drugs Program to ensure patients have access to the products needed to treat their rare diseases.






Associate Professor Carol Wicking

Director, Rare Voices Australia (Qld)

Associate Professor Carol Wicking has over 30 years experience in medical research, primarily investigating the genetic and mechanistic basis of a number of rare diseases including cystic fibrosis, naevoid basal cell carcinoma syndrome and a class of rare diseases known as ciliopathies. She is currently an independent consultant and Honorary Associate Professor in the Institute for Molecular Bioscience at the University of Queensland.










Professor Eric Morand MBBS (Hons) FRACP PhD

Director, Rare Voices Australia (VIC)

Professor Eric Morand is Professor and Head of the School of Clinical Sciences at Monash Health, Monash University’s largest clinical school. He is also a specialist rheumatologist, and Head of the Monash Health Rheumatology Unit, the largest in Australia. He specializes in research and clinical care of systemic lupus erythematosus, as well as complex rheumatic diseases and rheumatoid arthritis. He is founder of the Monash Lupus Clinic, Australia's largest research-grounded clinic for patients with SLE, a founding member of the Australian Lupus Registry & Biobank, and Chair of the Asia Pacific Lupus Collaboration.






Mr Viswanathan Narayanaswamy (Vishy)

Director, Rare Voices Australia (NSW) 

Vishy is a Chartered Accountant by profession and has over 18 years of experience in accounting, auditing and taxation. Vishy is a member with the Institute of Chartered Accountants of Australia and New Zealand and the Institute of Chartered Accountants of India. He is currently working as a senior manager in a public accounting firm in Sydney. Vishy will be supporting the Board with finance and accounting related matters. Vishy was diagnosed with PNH disease, a rare blood disorder in 2008 and is receiving treatment since then.







Nicole Millis

Chief Executive Officer, Rare Voices Australia (VIC)

Nicole Millis is Rare Voices Australia’s (RVA) Chief Executive Officer. A qualified social worker, Nicole has both personal and professional experience in the rare disease sector. Nicole has over 12 years’ worth of experience in rare disease advocacy, particularly in regard to access to treatments. Since 2018, Nicole has held the role of consumer nominee on the Life Saving Drugs Program Expert Panel. Under Nicole’s guidance, RVA led the collaborative development of the National Strategic Action Plan for Rare Diseases, the first nationally coordinated effort to address rare diseases in Australia.





Sarah Cannata

Stakeholder Engagement and Communications Officer (VIC)

Sarah Cannata is a passionate storyteller, a qualified journalist, a Public Relations consultant and has over 10 years’ worth of experience in Communications. Sarah has extensive experience working in the not-for-profit sector thanks to her time with Campaign for Australian Aid and is committed to using her skills to benefit all Australians living with a rare disease.





Anne Hunter

Administrative Support, Rare Voices Australia (VIC)

Anne works part time for RVA as the Administrative Officer and is based in Victoria. Anne has a personal connection with a rare disease living with Fabry Disease and caring for a child with a very rare disease. Anne is also on the Fabry Australia committee.