Flexible School Attendance Requirements

RVA has reached out to all state education ministers and Chief Health Officers regarding the need for flexible school attendance requirements for the rare disease community. Here is a template of the letter that has been sent. We encourage you to use this letter in your ongoing individual advocacy. 

Responses received to date:    

Western Australia – Dr Andrew Robertson, Chief Health Officer

Western Australia – Sue Ellery MLC, Minister for Education and Training 

South Australia – Ben Temperly, Executive Director, System Performance 

Tasmania – Jeremy Rockliff MP, Deputy Premier / Minister for Education and Training 

New South Wales – COVID-19 Ministerial team 

New South Wales – Hon Sarah Mitchell MLC, Minister for Education and Early Childhood Learning

Northern Territory – Emma Deane, Acting General Manager Quality School Systems and Support 

Queensland – Office of Hon Grace Grace MP, Minister for Education and Minister for Industrial Relations

Queensland – CHO COVID-19 Correspondence team 

ACT – Yvette Berry MLA, Minister for Education and Early Childhood Development

Victoria – the Hon James Merlino MP,  Deputy Premier, Minister for Education, Minister for the Coordination of Education

Medicines Australia acknowledges the Government’s decision to temporarily allow for substitution of dose strengths

20/04/2020 –  

During the current COVID-19 pandemic, Medicines Australia acknowledges the Government’s decision to temporarily allow for substitution of dose strengths or forms of medicines by a pharmacist without reference to the patient’s doctor only if the originally prescribed medicine is in serious shortage (as deemed by the TGA) at the time. This should only be implemented within strict protocols released by the TGA. Click here for more.

COVID-19 Pandemic: Critical Care Guidelines for Australians Living with a Rare Disease

On 8 April 2020, RVA released this statement, which has been developed in conjunction with our Scientific and Medical Advisory Committee following the COVID-19 press release issued by EURORDIS on 31 March 2020.  RVA distributed the statement publicly and reached out to our state government contacts as well as all state Chief Health Officers, expressing our interest in facilitating the development of any COVID-19 related work that will impact Australians living with a rare disease, such as critical care guidelines.

Responses received to date:   

Western Australia –  Dr Andrew Robertson, Chief Health Officer

New South Wales – COVID-19 Ministerial team 

Victoria – Department of Health & Human Services