Skip to content

RARE Helpline

Visit the RARE Portal: Australia’s growing national resource for rare diseases

Rare Voices Australia
  • Become a Partner
  • RARE Portal
  • RVA Education
  • About
    • Our Purpose
    • Our Team
    • Our Work
      • Advocacy
      • Policy and Submissions
      • Education
      • Research
      • National Rare Disease Summit
      • Parliamentary Events
      • RARE Portal
      • Rare Disease Disability Project
      • RArEST Project
    • RVA Ambassadors
    • Governance
  • Rare Diseases
    • What is a Rare Disease?
    • Helpful Information
    • Rare Disease Directory
  • Partnerships
    • A-Z of RVA Partners
    • Become an RVA Partner
    • Research Partnerships
    • Project Partnerships
    • Get Involved
    • Round Table of Companies
  • News & Stories
    • News
    • Personal Stories
    • Share Your Story
    • RVA Newsletters
    • RARE Portal Newsletters
    • Rare Disease Disability Project News
  • Action Plan
  • Contact
  • Donate
  • Search
  • About
    • Our Purpose
    • Our Team
    • RVA Ambassadors
    • Governance
  • Our Work
    • Advocacy
    • Policy and Submissions
    • Education
    • Research
    • National Rare Disease Summit
    • Parliamentary Events
    • RARE Portal
    • RArEST Project
  • Rare Diseases
    • What is a Rare Disease?
    • Helpful Information
    • Rare Disease Directory
  • Partnerships
    • A-Z of Partners
    • Become an RVA Partner
    • 2025-26 Research Partnerships: Important Updates
    • Project Partnerships
    • RVA Round Table of Companies
  • News & Stories
    • News
    • Personal Stories
    • Share Your Story
    • RVA Newsletters
    • RARE Portal Newsletters
    • Rare Disease Disability Project News
  • Action Plan
  • Contact
  • Donate
  • Facebook
  • X
  • Instagram
  • Search
  • YouTube
  • LinkedIn

RARE Portal eNewsletters

Archive

RARE Portal eNews December 2025
Read the December eNewsletter.

RARE Portal eNews June 2025
Read the June eNewsletter.


Stay up-to-date and get involved.

Sign up now for our monthly newsletter.

Rare Voices Australia logo
Registered Charity
Tel
+61 (0) 497 003 104
Email
[email protected]
Post
PO Box 138
Mentone VIC 3194
  • About
  • Rare Disease
  • Partnerships
  • News & Stories
  • Action Plan
  • Contact
  • Donate

Donate

Become a Partner

  • Facebook
  • Twitter
  • Instagram
  • Youtube
  • LinkedIn

Rare Voices Australia acknowledges Aboriginal and Torres Strait Islander people as the Traditional Owners of Country throughout Australia and as a priority population of the rare disease sector. We pay our respects to Elders–past, present and emerging.

© Copyright 2026 Rare Voices Australia Ltd.  |  Privacy Statement | Accessibility Statement

Subscribe

Sign up for Rare Voices Australia's monthly newsletter to receive the latest rare disease-related updates

Enter your email address

No thanks, I’m not interested!