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THE NATIONAL STRATEGIC ACTION PLAN FOR RARE DISEASES

Australian academics first called for a national plan for rare diseases in 2010, so it is with great excitement that the National Strategic Action Plan for Rare Diseases (the Action Plan) has been launched.

 

 

Rare Voices Australia (RVA) has led the collaborative development of the Action Plan. After extensive consultation with stakeholders around the country, the Action Plan has been developed by the rare disease sector, for the rare disease sector!

 

The National Strategic Action Plan for Rare Diseases

 

Companion documents

NEW: The evidence base for the National Strategic Action Plan for Rare Diseases 

Engaging with the rare disease community 

A stocktake of rare disease activities in Australia 

 

Summary communication materials 

NEW: Education video - Pillar 1: Awareness and Education

NEW: Education video - Pillar 2: Care and Support

NEW: Education video - Pillar 3: Research and Data 

 

Plan on a Page

Awareness and Education Summary

Care and Support Summary

Research and Data Summary

 

For all media requests or enquries about the Action Plan, please email: communications@rarevoices.com.au