THE NATIONAL STRATEGIC ACTION PLAN FOR RARE DISEASES
Australian academics first called for a national plan for rare diseases in 2010, so it is with great excitement that the National Strategic Action Plan for Rare Diseases (the Action Plan) has been launched.
Rare Voices Australia (RVA) has led the collaborative development of the Action Plan. After extensive consultation with stakeholders around the country, the Action Plan has been developed by the rare disease sector, for the rare disease sector!
The National Strategic Action Plan for Rare Diseases
NEW: The evidence base for the National Strategic Action Plan for Rare Diseases
Engaging with the rare disease community
A stocktake of rare disease activities in Australia
Summary communication materials
NEW: Education video - Pillar 1: Awareness and Education
NEW: Education video - Pillar 2: Care and Support
NEW: Education video - Pillar 3: Research and Data
Plan on a Page
Awareness and Education Summary
Care and Support Summary
Research and Data Summary
For all media requests or enquries about the Action Plan, please email: firstname.lastname@example.org