Dialog Box


national rare disease summit

SAVE THE DATE: RVA's biennial National Rare Disease Summit will be held on 20 and 21 November, 2020 in Sydney. The event will be invite only. RVA will share more information about the Summit in early 2020.


Read about the last Summit held in 2018 below. 


In mid-November 2018, Rare Voices Australia held its second National Rare Disease Summit. We have put together a Summit Report that provides both delegates and those who weren't at the event, with a snapshot of the two-day Summit. The Report includes a short summary and links out to a selection of content. While it's impossible to capture the Summit in its entirety via any Report, we hope this provides people with an insight into the energy and buzz that was a core feature of the 2018 National Rare Disease Summit, which we feel is very important to acknowledge and celebrate.